Benign Essential Blepharospasm Research Foundation (BEBRF)
www.blepharospasm.org The mission of the Benign Essential Blepharospasm Research Foundation, Inc. is to fund and promote medical research in the search for the cause and cure of blepharospasm, Meige, and other related disorders of the facial musculature, to provide support, education and referrals to persons with these disorders, and to disseminate information and serve as an authoritative resource to the medical community and the general public.
Cure Dystonia Now (CDN)
www.curedystonianow.org Cure Dystonia Now is a non-profit 501(c)(3) charitable foundation committed to advancing research for more and/or improved treatments, and ultimately a cure, for Dystonia.
Dystonia Coalition
https://www.rarediseasesnetwork.org/cms/dystonia The Dystonia Coalition is a collaboration of medical researchers and patient advocacy groups that is working to advance the pace of clinical and translational research in the dystonias to find better treatments. We can help you: Learn about how you can participate in clinical research to help in the effort to learn more about your condition. Get in contact with experienced doctors and other providers familiar with your condition. Find other people with your condition who may wish to share their knowledge and experience through patient support groups.
Dystonia Medical Research Foundation (DMRF)
www.dystonia-foundation.org The mission of the DMRF is to advance research for more treatments and ultimately a cure, to promote awareness and education, and to support the needs and wellbeing of affected individuals and families.
Foundation for Dystonia Research
http://foundationdystoniaresearch.org FDR is a private, not-for-profit organization supporting and promoting research in Dystonia. The aim of this support is to improve diagnosis and therapy, and ultimately, to find a cure for this third most common Movement Disorder. We believe that, in the interest of people with Dystonia, groundbreaking research aimed at understanding the pathogenesis of Dystonia is the only way to develop better diagnostic tools and treatments.
The National Spasmodic Torticollis Association (NSTA)
www.torticollis.org The mission of the National Spasmodic Torticollis Association (NSTA) is to support the needs and wellbeing of affected individuals and families; to promote awareness and education; to advance research for more treatments and ultimately a cure.
Tyler's Hope for a Dystonia Cure
www.tylershope.org Tyler's Hope for a Dystonia Cure was created to passionately pursue solutions and a cure to the pain and limitations caused by DYT1 Dystonia. We are inspired by the fearless energy, courage and love of life exemplified daily by our namesake, his sister and all those affected by Dystonia.
National Spasmodic Dysphonia Association (NSDA)
www.dysphonia.org The mission of the National Spasmodic Dysphonia Association is to advance medical research into the causes of and treatments for spasmodic dysphonia, promote physician and public awareness of the disorder, and provide support to those affected by spasmodic dysphonia. The NSDA is the only organization dedicated solely to the SD community.