Frederick County

Maryland's Model Waiver Program
https://mmcp.health.maryland.gov/waiverprograms/Pages/Model-Waiver-Fact-Sheet.aspx  
The Model Waiver, a program started in Maryland in 1985, allows medically fragile individuals who would otherwise be hospitalized and are certified as needing either hospital or nursing facility level of care to receive medically necessary and appropriate services in the community. As a result, the Model Waiver clients can continue to live at home with their families. The maximum number of individuals who may be enrolled in the Model Waiver is 200.

To be eligible for the Model Waiver several conditions must be met. These conditions are:
•Admission must be completed before the individual becomes 22 years old.
•The individual must meet the definition of a disabled child at the time application for Model Waiver services is made. The term “disabled child” means “ a chronically ill or severely impaired child, younger than 22 years old, whose illness or disability may not require 24-hour inpatient care, but which, in the absence of home care services, may precipitate admission to or prolong stay in a hospital, nursing facility, or other long-term facility” (COMAR 10.09.27).
•The individual must be certified as in need of a hospital or nursing facility level of care. This level of care is determined by a state contracted reviewer using information supplied by the referring physician.
•The individual’s medically necessary and appropriate community based medical services must be cost neutral. That is, the cost of the community-based services must not exceed the cost of institutional care.

Under the Model Waiver, the parents’ income and assets are waived during the financial eligibility process. This means that the child is considered an eligibility unit of one even though he or she will live in the community with the parent(s).

To obtain further information, please call the Coordinating Center for Home and Community Care (CCHCC) at 410-987-1048 (Baltimore) or 301-621-7830 (Washington). The staff at CCHCC is available to answer questions concerning the Model Waiver’s referral and enrollment process.

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Anne Arundel 410-768-5522 24hr Warmline-connects w/ a clinician or community mental health resources

Baltimore County 410-931-2214 Mobile crisis: Non-violent/no police response needed calls only.  SI/HI immediate and active crisis. EP crisis calls.  • In home team: IHT- elderly, agoraphobia, linked to services (outpatient mental health, substance use referrals, rental assistance, homelessness, umbrella service) and linked with health insurance. Helps patients get help if they are uninsured and need mental health services. • Bridge medication until their next appt- must see therapist first and then the psychiatrists. There is a current backlog on the Urgent Care, but the service is available.

Baltimore City 410-433-5175 The mobile crisis team serves of all Baltimore City and includes BCRI therapist and nurse. •They do not work with Private insurance. They will assess, but members cannot take advantage of the services because they only work with underinsured or uninsured.

Cecil & Eastern Shore 888 407-8018 After hours, calls go to police working on overnight mobile crisis. •Covers 8 counties- Cecil to Somerset only. In Worcester they can speak to a member and schedule urgent appts for County residents. •They are usually able to schedule the members within the same week. •They have no medication, nurses or prescribing doctors. They have therapists and social workers.

Frederick 301-662-2255 24/7 Criteria for child/adolescent mobile crisis: They have to have SI, threats to self or others, intent AND means. As well as SIB (active) and/or aggression. Normal response time is about an hour. Parent must give consent and be present for mobile crisis to be dispatched. • Also provides supportive listening, as well as, mental health resources for all of Western Maryland. •This is the call center for “211 Maryland”. It is preferred that members go through 211 for referrals instead of hotline.

Howard 410-531-6677 • Mobile crisis team is 9 am to 11 pm • They respond with police and respond to community crisis. • Crisis hotline: 24/7 • Crisis Intervention Center: 24/7 walk-in crisis counseling up to 6 sessions of short term counseling in between therapists or awaiting appointment.

Montgomery 240-777-4000 •24-hour Crisis line and mobile crisis. •Masters level therapists available for mobile crisis dispatch. • Mobile crisis will determine whether the patient needs to go to the hospital or just needs an on-site assessment.

Prince George’s 301-429-2185 • Mobile crisis response will be police and mental health clinicians. • Free

St. Mary’s 301-863-6661 •They are open to us calling with member on the line and then releasing the call.  •They will assist in scheduling counseling services for suicidal ideation OR will send a wellness check. •Hotline: will provide resources such as shelter, suicidal wellness checks, domestic violence services.

Washington D.C. (adults) 888-793-4357 • 18 and older; can also call (202) 673-9300.  • Must live in Washington DC. They will assist uninsured or those with private insurance. • Dispatches mental health unit to assess acute or chronic issues. • Substance Use division- Connect with inpatient or outpatient services. Asses stage of readiness, level of impairment and if a danger to self or others• 24/7 walk-in @ CPAP- Comprehensive Psychiatric Hospital Component - 1905 D St SE, Bldg. 14 • ONLY addresses psychiatric issues. Triage see psychiatrist right away. Involuntary petition.

Washington D.C./CHAMPS (Youth) 202-481-1440 •Ages 6-17 • Onsite response and assessment.  • Focus on hospital prevention and stabilization in their current environment. Coping skills. • Crisis support and safety planning. • Connect through services through Axis helpline.  • Staff are considered officer agents and can initiate FD-12 form to get child to hospital if they are a danger to self or others. (EP to transport them to a local hospital.)

My Health Apps -> Aggregate Source of Apps and User Reviews
http://myhealthapps.net/
Health App Reviewers - myhealthapps.net is made possible by patients, carers and patient groups who recommend and review apps.
Reviews - The reviews on this site are independent, and volunteered by patient groups, patients and carers.

MEMORY HEALTH: Lumosity
Daily Brain Games: Brain Training & Memory App
iPhone and Android is a fun, interactive way to build a daily habit. Multi-lingual.

MENTAL HEALTH: Headspace
“Gym membership for your mind”
Android features meditation and mindfulness techniques for stress.

MENTAL HEALTH: Self-Help for Anxiety
Daily Brain Games: Brain Training & Memory App
iPhone and Android Learning how to relax can help you manage anxiety symptoms with a tracking tool, relaxation instruction, treatment guidance, and a community to interact with.

MENTAL HEALTH: What’s Up?
Cognitive behavioral therapy (CBT)
iPhone and Android Involves learning more about how you think and how your thoughts affect your emotions. It features breathing techniques, habit and anxiety trackers, positive quotes, forums, and even a game.

MENTAL HEALTH: Inner Balance
iPhone
This app is designed to accompany the Inner Balance Sensor, which hooks to your earlobe and your iOS device. Then, the app monitors your heart rhythms and encourages you to control your physical response to stress and anxiety, reduce fatigue, improve concentration and focus, and find calmness in the midst of stressful situations.

MENTAL HEALTH: Stop Panic & Anxiety Self-Help
Android
For people suffering from panic disorders, uses cognitive behavioral therapy approaches to help users reframe their destructive thought patterns that may lead to or worsen their anxiety. It also features relaxation audios, an anxiety diary, and emotional training tools.

MENTAL HEALTH: Mood Diary iPhone App
https://www.medhelp.org/land/mood-diary-app  

Drug Wallet Card (CVS) Create a Medication List for Member https://www.cvs.com/drug/wallet-card   

Health and Medication Record (Poison Control) Keep a list of all of your medicines (prescription, OTC, supplements, and vitamins) on this handy tool to make it easy to share the info with your doctor and pharmacist. Print the tool double-sided to keep all of your medical information in one place. Also provides questions you should ask your doctor when you are prescribed a new medicine. http://bit.ly/2ngXYP7 (click link and then hit refresh on your browser to open)
Health and Medication Record (ASHP)

My Medicine List - http://www.safemedication.com/safemed/MyMedicineList/MyMedicineList_1.aspx

Medscape’s Pill Identifier Reference Tool https://reference.medscape.com/pill-identifier Search from over 10,000 tablets and capsules by imprint, color, shape, form, and scoring. Once a medication is selected, you will be able to: Verify drug name, strength, and detailed pill characteristics; Access drug dosing, interactions, adverse effects, and warnings

How to Administer Medications - http://www.safemedication.com/safemed/MedicationTipsTools/HowtoAdminister.aspx
Your medicine can only work correctly if it is administered properly in the body. Click the links below for helpful illustrations that show the right way to use eye, ear, and nose drops; eye ointments; inhalers; and suppositories.
Ear Drops, Eye Drops, Metered Dose Inhalers, Nasal Sprays, Rectal Suppositories

Poison Prevention – Keep Medications Up and Away
Keeping Children Safe: Maryland Emergency Medical System
http://www.miemss.org/home/Portals/0/Docs/EMSC/Safe_Kids_Maryland/EMS-News-OctP13-Opioids.pdf?ver=2017-12-11-142606-140
For the past three years that approximately 60,000 young children are brought to the emergency room each year because they got into medicines that were left within reach.

Learn More About Safe Medication - http://bit.ly/2ouGdL6
Keeping unused medicines in the home can lead to poisonings and overdoses in young children, potential abuse by teens, or therapeutic errors in adults and seniors.
http://bit.ly/2pAZJEU The FDA-recommended way to dispose of medicines at home plus web-link for permanent prescription drop-off locations.

Poison Center / University of Maryland School of Pharmacy - https://mdpoison.com/  

Poison Prevention Information - www.mdpoison.com and www.poison.org

Poison Safety Packet FREE - https://mdpoison.com/education/request-free-poison-safety-packet/ 
Request a FREE poison safety packet for their home. This free packet includes poison safety information, Mr. Yuk stickers, telephone stickers, and a magnet. To request your packet, please complete and submit the form below. Once your form has been submitted, you should receive your packet at the address that you provided in 10-14 days. You may also call to order materials (410) 706-8122

Safe Needle Disposal Information from Needy Meds - https://www.needymeds.org/safe-needle
The website offers general information on the proper handling and disposal of used needles, syringes and sharps, state health and solid waste department contacts, and pharmaceutical company take-back programs.

Safe Needle Disposal Organization - www.safeneedledisposal.org For assistance, call 1-800-643-1643 anytime from 9am-5pm
To find resources in your area, simply enter your Zip Code and distance out to find disposal locations near you along with their contact information, or search by state. If there are no locations by state or Zip Code search, optional FDA recommendations are provided for sharps disposal.

FDA Cleared Sharps Containers - https://safeneedledisposal.org/sharps-management/fda-cleared-sharps-containers/
The U.S. Food and Drug Administration (FDA) recommends that used needles and other sharps be immediately placed in FDA-cleared sharps disposal containers. These strong, plastic containers are generally available through pharmacies, medical supply companies, and online. Needle clippers are FDA-cleared sharps containers that automatically store cut needles, making an insulin syringe or pen needle unusable. This device can safely hold up to 1,500 clipped needles. Once a clipper safely removes the needle from a syringe, the syringe can be placed in the regular household trash. When a needle clipper is full, it should be disposed of according to your state or local regulations. Needle clippers are typically available for purchase at pharmacies, medical supply stores and major retailers. Be sure to check with your prescriber or pharmacist to make sure your needle device is compatible with a needle clipper before purchasing one.

Multiple Sclerosis Society http://www.nccinc.org/ (202) 296-5363

Greater DC and Maryland Chapter, National MS Society 1-800-344-4867 or 443-641-1200

MS Medical Appt Transportation 443-641-1200 or 800-344-4867

Multiple Sclerosis Chapters https://www.nationalmssociety.org/Chapters/MDM/Groups-and-Discussions  

Muscular Dystrophy Association (MDA) https://www.mda.org/  

Local MDA Offices in MD/DC/VA
BALTIMORE MDA Office 410-494-7106
https://www.mda.org/office/baltimore or baltimore@mdausa.org 
8501 LaSalle Road #106, Towson, MD 21286

DC/VA MDA Office 703-476-5780
11800 Sunrise Valley Drive #1210, Reston, VA 20191
Email: dcva@mdausa.org 
Facebook: https://www.facebook.com/MDA.DCVA/

GREATER VIRGINIA MDA Office 804-285-2961
1503 Santa Rosa Road #120, Richmond, VA 23229
Email: richmond@mdausa.org 
Facebook: https://www.facebook.com/MDAGreaterVirginia/
 
     Closest Summer Camp 06/13/2020
     https://www.mda.org/summer-camp 
     Camp Fairlee, 22242 Bay Shore Rd Chestertown, MD 21620

     Quest Magazine https://www.mda.org/quest 

Online Community - Patients Like Me - Muscles, Bones, and Joints Forum
https://www.patientslikeme.com/conditions/muscular-dystrophy

Facebook Community: https://www.facebook.com/PatientsLikeMe

MDA Care Centers
1. Johns Hopkins University
Pediatric Care Center 410-955-4259
https://www.mda.org/clinic/johns-hopkins-university-pediatric-care-center 
Adult Care Center 410-955-6435, option 1
https://www.mda.org/clinic/johns-hopkins-university-adult-care-center 
601 N. Caroline Street, Outpatient Center, 5th Floor, Baltimore, MD 21287

2. Georgetown University Hospital (202) 444-1298
https://www.mda.org/clinic/georgetown-university 
3800 Reservoir Road NW, Washington, DC 20007

3. Children's National Medical Center (202) 476-3094
https://www.mda.org/clinic/childrens-national-medical-center 
111 Michigan Avenue NW, Washington, DC 20010

4. Virginia Commonwealth University Medical Center (804) 828-9350
https://www.mda.org/clinic/virginia-commonwealth-university 
11958 W. Broad Street, 4th Floor, Richmond, VA 23233

5. University of Virginia Adult Care Center General: (434) 924-8617 or ALS: (434) 243-5932
https://www.mda.org/clinic/university-virginia-adult-care-center 
https://med.virginia.edu/neurology/subspecialty-divisions/neuromuscular-disorders/ 
1215 Lee Street, 4th Floor of Patient Care, Charlottesville, VA 22908

6. Children's Hospital Of Richmond At VCU (804) 628-5804
https://www.mda.org/clinic/childrens-hospital-richmond 
1000 E. Broad Street, 3rd Floor, Room 3-336, Richmond, VA 23298

Resource List for Families https://www.mda.org/care/resource-list
Upon learning you've been diagnosed with a neuromuscular disease, understanding where to begin can be challenging. The resources below can help you navigate your journey.
If you're looking for one-on-one assistance, the National MDA Resource Center is available Monday through Friday 9 am to 5 pm CST by phone at 1-833-ASK-MDA1 (1-833-275-6321) or email at ResourceCenter@mdausa.org. 
Accessible Travel Access to travel is an important element in living life without limits. These resources and tips can help.
Clinical Trials Finder Tool Use our Clinical Trials Finder Tool to find a clinical trial for you or a loved one.
Emergencies Following local weather emergencies, MDA actively tries to reach all individuals it serves who live in the affected areas to assess their well-being and offer assistance.
Equipment Assistance As neuromuscular diseases progress, MDA Care Center team members are prepared to recommend and prescribe various types of medical equipment that can increase independence and enhance quality of life.
Flu Season Individuals with a neuromuscular disease are at increased risk of serious and possibly life-threatening complications from the flu, so it's important to stay informed and takes steps to protect yourself and your family.
For Caregivers MDA honors family caregivers for their tireless support and dedication during National Family Caregivers Month in November and all year-round.
For Young Adults We are committed to supporting young adults with resources, programming and community connection as you move through high school, higher education, employment and independent living.
K-12 Education MDA offers support and information to assist parents of children with neuromuscular disease in preparing and advocating for the best education possible.
MOVR Data Hub Learn more about the MOVR data hub and how you can participate.
Newborn Screening Newborn screening is a public health program in the United States that aims to identify newborns with certain serious and life-threatening genetic diseases that can be treated, and for which earlier treatment may contribute to better outcomes.
Quest Magazine View the latest edition of our award-winning Quest magazine, filled with resources, stories and support for individuals and families with a neuromuscular disease.
Additional Resources MDA has gathered an extensive list of related online resources, including government websites, to help assist you in locating assistance relating to education, careers, accessibility, transportation, medical benefits and much more.

MDA Engage Social Gatherings $500 ticket (fundraiser)
https://mda.donordrive.com//index.cfm?fuseaction=donorDrive.event&eventID=915
MDA Engage Social Gatherings are a new addition to MDA’s flagship community event series. MDA Engage Social Gatherings facilitate community through establishing opportunities for patients, clinicians, researchers, volunteers, sponsors and supporters and MDA staff to connect in a casual social setting. Participants will be able to share their stories and be united within the neuromuscular community, supporting each other and sharing experiences. MDA Engage Social Gatherings are scheduled to take place in approximately 50 cities across the U.S. in 2020. These Social Gatherings will be hosted at venues such as sporting arenas, outdoor picnic spaces and casual indoor meeting spaces. Each event offers sponsors the opportunity to build connections and participate in fun activities designed to engage all attendees. Events are typically 3-4 hours. Dates are subject to change. You will receive additional information about the event within a few business days of your ticket purchase. If you have questions on an event before purchasing, please contact Ali Mozenter at amozenter@mdausa.org.
Washington, DC - 8/12/2020
Baltimore, MD - 8/22/2020
Richmond, VA - 12/5/2020