Muscular Dystrophy Association (MDA) https://www.mda.org/
Local MDA Offices in MD/DC/VA
BALTIMORE MDA Office 410-494-7106
https://www.mda.org/office/baltimore or baltimore@mdausa.org
8501 LaSalle Road #106, Towson, MD 21286
DC/VA MDA Office 703-476-5780
11800 Sunrise Valley Drive #1210, Reston, VA 20191
Email: dcva@mdausa.org
Facebook: https://www.facebook.com/MDA.DCVA/
GREATER VIRGINIA MDA Office 804-285-2961
1503 Santa Rosa Road #120, Richmond, VA 23229
Email: richmond@mdausa.org
Facebook: https://www.facebook.com/MDAGreaterVirginia/
Closest Summer Camp 06/13/2020
https://www.mda.org/summer-camp
Camp Fairlee, 22242 Bay Shore Rd Chestertown, MD 21620
Quest Magazine https://www.mda.org/quest
Online Community - Patients Like Me - Muscles, Bones, and Joints Forum
https://www.patientslikeme.com/conditions/muscular-dystrophy
Facebook Community: https://www.facebook.com/PatientsLikeMe
MDA Care Centers
1. Johns Hopkins University
Pediatric Care Center 410-955-4259
https://www.mda.org/clinic/johns-hopkins-university-pediatric-care-center
Adult Care Center 410-955-6435, option 1
https://www.mda.org/clinic/johns-hopkins-university-adult-care-center
601 N. Caroline Street, Outpatient Center, 5th Floor, Baltimore, MD 21287
2. Georgetown University Hospital (202) 444-1298
https://www.mda.org/clinic/georgetown-university
3800 Reservoir Road NW, Washington, DC 20007
3. Children's National Medical Center (202) 476-3094
https://www.mda.org/clinic/childrens-national-medical-center
111 Michigan Avenue NW, Washington, DC 20010
4. Virginia Commonwealth University Medical Center (804) 828-9350
https://www.mda.org/clinic/virginia-commonwealth-university
11958 W. Broad Street, 4th Floor, Richmond, VA 23233
5. University of Virginia Adult Care Center General: (434) 924-8617 or ALS: (434) 243-5932
https://www.mda.org/clinic/university-virginia-adult-care-center
https://med.virginia.edu/neurology/subspecialty-divisions/neuromuscular-disorders/
1215 Lee Street, 4th Floor of Patient Care, Charlottesville, VA 22908
6. Children's Hospital Of Richmond At VCU (804) 628-5804
https://www.mda.org/clinic/childrens-hospital-richmond
1000 E. Broad Street, 3rd Floor, Room 3-336, Richmond, VA 23298
Resource List for Families https://www.mda.org/care/resource-list
Upon learning you've been diagnosed with a neuromuscular disease, understanding where to begin can be challenging. The resources below can help you navigate your journey.
If you're looking for one-on-one assistance, the National MDA Resource Center is available Monday through Friday 9 am to 5 pm CST by phone at 1-833-ASK-MDA1 (1-833-275-6321) or email at ResourceCenter@mdausa.org.
Accessible Travel Access to travel is an important element in living life without limits. These resources and tips can help.
Clinical Trials Finder Tool Use our Clinical Trials Finder Tool to find a clinical trial for you or a loved one.
Emergencies Following local weather emergencies, MDA actively tries to reach all individuals it serves who live in the affected areas to assess their well-being and offer assistance.
Equipment Assistance As neuromuscular diseases progress, MDA Care Center team members are prepared to recommend and prescribe various types of medical equipment that can increase independence and enhance quality of life.
Flu Season Individuals with a neuromuscular disease are at increased risk of serious and possibly life-threatening complications from the flu, so it's important to stay informed and takes steps to protect yourself and your family.
For Caregivers MDA honors family caregivers for their tireless support and dedication during National Family Caregivers Month in November and all year-round.
For Young Adults We are committed to supporting young adults with resources, programming and community connection as you move through high school, higher education, employment and independent living.
K-12 Education MDA offers support and information to assist parents of children with neuromuscular disease in preparing and advocating for the best education possible.
MOVR Data Hub Learn more about the MOVR data hub and how you can participate.
Newborn Screening Newborn screening is a public health program in the United States that aims to identify newborns with certain serious and life-threatening genetic diseases that can be treated, and for which earlier treatment may contribute to better outcomes.
Quest Magazine View the latest edition of our award-winning Quest magazine, filled with resources, stories and support for individuals and families with a neuromuscular disease.
Additional Resources MDA has gathered an extensive list of related online resources, including government websites, to help assist you in locating assistance relating to education, careers, accessibility, transportation, medical benefits and much more.
MDA Engage Social Gatherings $500 ticket (fundraiser)
https://mda.donordrive.com//index.cfm?fuseaction=donorDrive.event&eventID=915
MDA Engage Social Gatherings are a new addition to MDA’s flagship community event series. MDA Engage Social Gatherings facilitate community through establishing opportunities for patients, clinicians, researchers, volunteers, sponsors and supporters and MDA staff to connect in a casual social setting. Participants will be able to share their stories and be united within the neuromuscular community, supporting each other and sharing experiences. MDA Engage Social Gatherings are scheduled to take place in approximately 50 cities across the U.S. in 2020. These Social Gatherings will be hosted at venues such as sporting arenas, outdoor picnic spaces and casual indoor meeting spaces. Each event offers sponsors the opportunity to build connections and participate in fun activities designed to engage all attendees. Events are typically 3-4 hours. Dates are subject to change. You will receive additional information about the event within a few business days of your ticket purchase. If you have questions on an event before purchasing, please contact Ali Mozenter at amozenter@mdausa.org.
Washington, DC - 8/12/2020
Baltimore, MD - 8/22/2020
Richmond, VA - 12/5/2020