Allegany County

Needy Meds https://www.needymeds.org/safe-needle The website offers general information on the proper handling and disposal of used needles, syringes and sharps, state health and solid waste department contacts, and pharmaceutical company take-back programs.

Safe Needle Disposal www.safeneedledisposal.org For assistance, call 1-800-643-1643 anytime from 9am-5pm
To find resources in your area, simply enter your Zip Code and distance out to find disposal locations near you along with their contact information, or search by state. If there are no locations by state or Zip Code search, optional FDA recommendations are provided for sharps disposal.

Sharps Containers https://safeneedledisposal.org/sharps-management/fda-cleared-sharps-containers/ The U.S. Food and Drug Administration (FDA) recommends that used needles and other sharps be immediately placed in FDA-cleared sharps disposal containers. These strong, plastic containers are generally available through pharmacies, medical supply companies, and online. Needle clippers are FDA-cleared sharps containers that automatically store cut needles, making an insulin syringe or pen needle unusable. This device can safely hold up to 1,500 clipped needles. Once a clipper safely removes the needle from a syringe, the syringe can be placed in the regular household trash. When a needle clipper is full, it should be disposed of according to your state or local regulations. Needle clippers are typically available for purchase at pharmacies, medical supply stores and major retailers. Be sure to check with your prescriber or pharmacist to make sure your needle device is compatible with a needle clipper before purchasing one.

Neurofibromatosis Tumor Foundation http://nftumorfoundation.org/
Mid-Atlantic (443) 423-0535, 1543 Dellsway Road, Towson, MD 21286 john.dobson@nftumorfoundation.org

U.S. National Library of Medicine, Genetics Home Reference https://ghr.nlm.nih.gov/condition/neurofibromatosis-type-1

Neurofibromatosis Network https://www.nfnetwork.org/

Facebook: https://www.facebook.com/Neurofibromatosis-Network-9766902412/?ref=ts

YouTube: https://www.youtube.com/user/nfincvideo

Webinars for Families/Caregivers https://www.nfnetwork.org/index.php?id=webinars

Inspire Support Community https://www.inspire.com/groups/neurofibromatosis-network/?ga=freshen 

Children's Tumor Foundation (NF1) https://www.ctf.org/understanding-nf/nf1

Johns Hopkins Comprehensive Neurofibromatosis Center https://www.hopkinsmedicine.org/neurology_neurosurgery/centers_clinics/neurofibromatosis/nf1/
Maryland Patients - For assistance with making an appointment, please contact the Johns Hopkins Comprehensive Neurofibromatosis Center at 410-502-6732
Find a Doctor https://www.hopkinsmedicine.org/neurology_neurosurgery/centers_clinics/neurofibromatosis/experts/index.html

Kids Health https://kidshealth.org/en/parents/nf.html

RASopathies Net https://rasopathiesnet.org/ RASopathies are a group of genetic syndromes that may be as common as 1:1000. The RASopathy syndromes include: cardio-facio-cutaneous (CFC), Costello (CS), LEOPARD/NSML, Neurofibromatosis type 1 (NF1), and Noonan (NS).

Facebook: https://www.facebook.com/rasopathiesnetwork

Instagram: https://www.instagram.com/rasopathiesnet

Twitter: https://twitter.com/RASopathiesnet

RASopathy Clinicians
https://rasopathiesnet.org/rasopathies/rasopathies-clinics/

Our mission is to advance research of the RASopathies by bringing together families, clinicians and scientists. RASopathiesNet is the product of RASopathies Network USA, a 501c3 Non-Profit, and the RASopathies Network UK. Our goal is to grow a community of practice around RASopathies research.  This includes:

• Convening biennial symposia to bring families, clinicians and researchers together
• Developing a discussion forum for professionals to foster collaborative research efforts
• Developing and maintaining family-friendly informational resources, including a bibliography for lay and professional audiences.
• Researching the development and implementation of a family/patient-driven disease registry

2021 Conference - 7th International RASopathies Symposium - Contact: info@rasopathiesnet.org
Chairs: Maria Kontaridis, PhD, Masonic Medical Research Institute, Utica, NY
Amy Roberts, MD, Boston Children’s Hospital, MA
July 23-25, 2021 Marriott Tech Center, Denver, Colorado 

Peer-reviewed Journal Publications and Conference Reports
Advancing RAS/RASopathy therapies: An NCI-sponsored intramural and extramural collaboration for the study of RASopathies, published Jan 2020, Gross AM et al.; Am J Med Genet Part A
https://onlinelibrary.wiley.com/doi/abs/10.1002/ajmg.a.61485

The sixth international RASopathies symposium: Precision medicine-From promise to practice, published Dec 2019, Gripp KW et al.; Am J Med Genet Part A
https://onlinelibrary.wiley.com/doi/abs/10.1002/ajmg.a.61434

Noonan Syndrome Support Group (888) 686-2224
https://www.teamnoonan.org/ 

Food Lion Nutrition http://www.foodlion.com/NutritionWellBeing 

Giant Food – Nutritionists, Classes https://giantfood.com/health-and-wellness/#/our-nutritionists Consultation is $25 and at the end you will receive a $25 store gift card in return

Martin’s Foods – Nutritionists https://martinsfoods.com/health-and-wellness/#/our-nutritionists 

Publix – Dietitians - Virginia Locations http://store.publix.com/publix/  

Safeway Nutrition http://www.safeway.com/ShopStores/Pharmacy-Nutrition.page

See Glossary "D" for additional information on Dieticians.